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Questions to ask your provider
About the clinical study
What do researchers hope to learn and who might benefit from it?
Will any of the groups receive a placebo or an inactive treatment?
How will the findings of the research be shared?
When is the study expected to be completed?
About possible risks and benefits
What are the risks of the research intervention? Does the Food and Drug Administration (FDA) approve or oversee the intervention?
What are the short- or long-term risks, discomforts, or unpleasant side effects?
How will my care team minimize risks, discomforts, or unpleasant side effects?
How might I benefit from participating in the research?
About participation and care
Why am I, specifically, being asked to participate?
What is my role? What kind of medications, procedures, or tests would be done?
Will I have to go anywhere outside of Parkland to participate in the study?
If I decide not to participate, would this decision affect my current medical care?
How would being in this study affect my daily life?
Questions to ask your research navigator
About costs and compensation
Will I have to pay to participate in the clinical trial?
Do clinical studies bill insurance?
Who can help answer any questions from my insurance company or health plan?
Will there be any travel or childcare costs that I need to consider while I am in the trial?
About privacy and confidentiality
Will my Personal Health Information (PHI) be shared and protected?
Additional Resources
https://clinicaltrials.gov/
https://clinicaltrials.utswmed.org/
https://www.hhs.gov/ohrp/education-and-outreach/about-research-participation/informational-videos/index.html
https://www.researchmatch.org/
https://www.fda.gov/patients/clinical-trials-what-patients-need-know
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